In October, 2012, after many doctor visits and tests, Chris and Melissa were advised to terminate their pregnancy. For Chris and Melissa termination was not an option. They chose to continue the pregnancy and relied on their faith to guide them despite the doctors concerns that Lacey would die in utero or within hours after birth.
Lacey Rose was born on February 1st, 2013, and immediately airlifted to Denver’s Children’s Hospital where it was determined she had a Congenital Diaphragmatic Hernia as well as two large holes in her heart. Lacey’s team of doctors decided that she would require immediate surgery. Her final diagnosis was Arthrogryposis Multiplex Congenita or AMC, which is a rare syndrome that greatly affects the congenital joints. AMC occurs in 1 in 3,000 births. Of these births, 20-30% die before their first birthday.
Lacey Rose continues to overcome hurdles each day as a result of her daily physical therapy. She also requires an additional 24/7 care and assistance. Lacey is unable to walk without the assistance of a walker, but that doesn’t stop her from being mobile and interacting with her family, friends, and her favorite toys. Lacey desires to live an active life full of dancing, playing ball, and all Colorado outdoor activities. She is a true joy and inspiration to all. Lacey brings hope and love to other children like her.
Chris, Melissa and Lacey’s desire is that The Lacey Rose Ranch will help other special needs children and families like ours.